What is the lifespan of pediatric tuberous sclerosis? Does tuberous sclerosis affect longevity

Hello, the condition of each tuberous sclerosis patient is not the same, the development of the disease is not the same, so you can not generalize how long you can live, according to your situation, it is recommended that you go to the local regular hospital in time to receive an examination, and carry out**, as soon as possible**, so as not to aggravate the condition, regular work and rest in life, appropriate exercise, quit smoking and drinking, maintain a comfortable mentality, and actively cooperate with the doctor to carry out examinations and ** in order to have a longer life.

It is uncertain that tuberous sclerosis complex, which mainly manifests as facial sebaceous adenoma, epilepsy, mental retina, and retinal lesions of the eye.

Guidance: There may also be calcification of the skull, or tumors of the heart, kidney, bone and other parts. It is an autosomal dominant disorder.

Tuberous sclerosis itself is a disease caused by genetic factors and the nervous system and other involvement, with striped hypopigmented plaques, facial angiofibromas, epilepsy, and intellectual disability as the main manifestations. The prognosis of this disease is related to the extent of organ involvement and the extent of the lesion. The prognosis is generally worse in patients with more severe onset in infancy, with 3% of patients dying in the first year, 28% by age 10, and 75% before age 25.

He often dies of epilepsy and secondary infection, and occasionally dies of tumor, heart failure and pulmonary fibrosis, and only has ** damage and epilepsy for older children and young adults, and the prognosis is difficult to predict.

Tuberous sclerosis, generally referred to as tuberous sclerosis, is generally not affected by the lifespan of pediatric tuberous sclerosis. Depending on the reason, the life expectancy will also vary, and the details are as follows:

1. Tuberous sclerosis itself is a central nervous system abnormality caused by genetic factors. For children with tuberous sclerosis, it is necessary to take active care, do a good job of nursing, and pay attention to diet. Normally, the threat to life is small, so children with tuberous sclerosis complex can grow up normally without affecting their lifespan.

2. Tuberous sclerosis complex is very easy to induce various malignant tumors, because the characteristics of this disease will destroy the immune system, resulting in a rapid decline in immunity for a short time, thus causing malignant diseases. **For this disease, a targeted topical laser may be used to remove visible nodules from the lesions. Then choose to use vitamin B to nurture nerves, such as vitamin B6 and vitamin B1.

In addition, Kailiang must alleviate the neurological symptoms of the child, and for patients with epilepsy, they can choose to go to the neurology department for targeted ** to prevent the aggravation of symptoms.

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Detail. Pediatric tuberous sclerosis.

Popular Science China. This entry is provided by the National Health Commission's authoritative medical science popularization project dissemination network platform Encyclopedia Famous Doctor.com.

Review expert Tang Jianping details.

Hollow sclerosis, also known as Bournenville disease and Epiloia disease, is a lesion caused by abnormal development of organs originating from the ectoderm and affecting the nervous system, ** and eyes, and can also affect mesoderm and endoderm organs such as the heart, lungs, bones, kidneys and gastrointestinal tract. The disease often affects multiple organs and tissues, and almost any organ or tissue can be affected. The clinical manifestations are complex and diverse depending on the location of the lesion, and complications such as renal failure, heart failure, status epilepticus, and respiratory failure may occur.

Linchun deficiency is clinically characterized by facial angiofibroma, seizures, and mental decline. The disease is inherited in an autosomal dominant manner, but sporadic cases are not uncommon.

Tuberous sclerosis complex is an autosomal dominant neuropathy characterized by impairment, seizures, and mental decline. There are no exact statistics on the lifespan of patients with tuberous sclerosis, and the outcome of a patient with tuberous sclerosis complex depends on the severity of the patient's symptoms, which can range from mild impairment to varying degrees of learning disability and seizures, to severe intellectual disability, uncontrollable seizures, and kidney failure. If the patient's symptoms are mild and the disease does not affect lifespan, if there is severe intellectual disability and uncontrollable continuous seizures and kidney failure, the patient's lifespan will be greatly reduced.

The main causes of death are kidney disease such as kidney failure, brain tumors, lymphangiomyomas, and status epilepticus in patients with severe intellectual disability, or the development of fatal bronchopneumonia, which can lead to a critical condition that can lead to a life-threatening loss within a few years.

Hello! The main symptom is,** reddish-brown papules. Diagnosed with tuberous sclerosis complexes by the hospital.

Tuberous sclerosis complex is an autosomal dominant neuro** syndrome. Organ development is mostly abnormal due to ectodermal tissue, and multiple organs such as brain, **, peripheral nerves, and kidneys can be affected, and the clinical characteristics are facial sebaceous adenoma, seizures, and mental retardation. **。

Opinion: Symptomatic relief by surgery** or medication** at the moment. In terms of diet, it is advisable to eat foods high in unsaturated fatty acids, trace elements and proteins, and avoid greasy foods. Avoid alcoholic beverages.

In fact, tuberous sclerosis complex is a major disease, which can lead to mental decline, epilepsy, glaucoma, kidney cysts, osteosclerosis and other diseases, and there is no effective method for this disease for the time being, so it is necessary to be diagnosed with tuberous sclerosis as soon as possible to maintain life.

Tuberous sclerosis complex is an autosomal dominant inherited disease of the nervous class, and the pathological changes are glial proliferative sclerosis nodules, which occur widely in the cerebral cortex and interbasal. Typical manifestations include facial sebaceous tumors, seizures, etc. Currently, the disease is mainly symptomatic and supportive**.

Antiepileptic drugs for seizures**; Cranial pressure lowering in patients with high intracranial pressure**; ACTH** for patients with infantile epilepsy; Surgery in patients with obstruction of cerebrospinal fluid circulation**; Patients with facial sebaceous adenoma undergo a facelift**.

Hello, tuberous sclerosis complex is a very rare genetic disease, and the probability of appearing in the next generation is about 50%. It is necessary to control the symptoms in time, control the epilepsy, and try to improve the mental development. Reduce the involvement of other organs and prevent irreversible damage to vision and nervous system.

Make sure you have a calm mind and have regular check-ups.