How much do you know about rare diseases when drugs are covered by medical insurance, and the number

Rare diseases are a huge damage to any family, mainly because the audience of rare diseases is relatively small, so many drugs are relatively high after being developed, many families have become fragmented because of rare diseases, and even some families have no choice but to give up the use of related drugs and give up their lives because the drugs for rare diseases are too high, which really makes people feel very uncomfortable and pity.

According to relevant information, so far there have been nearly 2,860 kinds of drugs into the national medical insurance catalog, and 67% of the domestic has been listed, rare disease drugs are among them, this to a large extent to reduce the burden of patients, in the past ten years, China's medical insurance insurance has increased from 100 million to 100 million, it is enough to represent that China has built the world's largest basic medical security network, any resident can be well protected after illness, can directly use medical insurance reimbursement of the corresponding drugs, Thus reducing the financial burden.

Rare disease medication is always a serious problem, mainly because rare disease drugs are relatively high, up to hundreds of thousands at every turn, and even some rare diseases, a shot may be as high as millions, but this is helpless, some people have gone bankrupt for rare diseases, there is nothing to sell, some families are not only fragmented because of rare diseases, but also bear huge debts, rare disease drugs have caused a great economic burden to many families, resulting in many families becoming very discordant, and 67% Drugs for rare diseases can be included in medical insurance, which can ensure that these patients still have hope of life to a large extent.

Rare diseases will cause great harm to any family, and these rare disease drugs are very expensive, but fortunately, in recent years, with the national medical insurance has included some rare disease drugs, which has solved a great financial burden for many families, so we still have to praise the country, but we still have to pay attention to our physical health and exercise ourselves appropriately in life.

According to relevant information, so far there have been nearly 2,860 kinds of drugs into the national medical insurance catalog, and 67% of the domestic has been listed, rare disease drugs are among them, this to a large extent to reduce the burden of patients, in the past ten years, China's medical insurance insurance has increased from 100 million to 100 million, it is enough to represent that China has built the world's largest basic medical security network, any resident can be well protected after illness, can directly use medical insurance reimbursement of the corresponding drugs, Thus reducing the financial burden.

According to the definition of the World Health Organization, rare diseases are diseases with a low incidence and a small number of cases, and the general number of people only accounts for 19% of the total population. The exact ** of this disease is unknown, and most of them are congenital diseases, such as ALS, rabbit layer, congenital heart disease, albinism, thalassemia, etc.

Generally, it is leukemia or cardiovascular and cerebrovascular diseases, which are generally difficult to achieve, and the mortality rate is as high as 99%.

Medical insurance is a kind of guarantee for the life of retirees, although the money is not much, but it can ensure that they will not go hungry after retirement.

What is the role of health insurance?

It can promote the improvement of labor efficiency and promote the rapid development of the manufacturing industry. Medical insurance is an inevitable trend of social progress and modernization. The establishment and improvement of the medical insurance system, on the one hand, the medical insurance reduces the burden of employees, improves labor efficiency, and promotes the rapid development of the manufacturing industry; On the other hand, it also ensures the health of employees and the proper production of human capital.

Adjust income disparities to reflect the fairness and justice of social development. Medicare is a very important form of income redistribution to adjust the income differential based on the collection of medical insurance premiums and the payment of medical insurance surcharges.

It is an important means of maintaining social order. The financial assistance provided by medical insurance to sick employees is conducive to eliminating the social development troubles caused by diseases, and is a key social mechanism to regulate interpersonal relationships and social conflicts. This is an important way to promote the civilization and growth of society.

The social form of medical insurance and social mutual aid shows a new type of interpersonal relationship in which "one party is in difficulty, and all parties support", which is conducive to promoting social civilization and growth. This is an important guarantee for comprehensively deepening reform, especially the reform of state-owned enterprises.

How many years can I enjoy medical insurance for life?

For those who participate in employee medical insurance, medical insurance only needs to be paid for a period of time, and there is no need to continue to pay after reaching retirement age, and they can enjoy lifelong medical insurance wages. For the employee medical insurance system, you can enjoy lifelong medical insurance for two years, and the duration of this different type is different in different regions. Judging from the actual situation, the minimum payment period of Yongjia County employee medical insurance is 20 years, regardless of gender, if you are not satisfied with the payment period, you can pay a lump sum when you retire, or choose to pay employee medical insurance every month.

Have to. Many people may feel that if they pay enough for 20 years of health insurance, it is important to note here that the premise of the free payment is after retirement, so pay enough fixed years before retirement, but also need to pay the pension again. First of all, if you work normally in a company or administrative agency and only need to sign a contract normally, then the company must participate in employee medical insurance in accordance with the relevant legal standards, regardless of whether the medical insurance payment can reach the minimum payment period.

Secondly, for some people who have not yet retired, if they interrupt the payment of medical insurance at will, according to the relevant standards of medical insurance at this stage, it only takes one month to reimburse the normal expenses, which means that if the payment period of medical insurance reaches the minimum period, everyone interrupts the payment, then during the period before retirement, everyone can not enjoy the salary of medical insurance normally.

The reason why rare drugs are included in medical insurance is mainly to reduce the drug burden and economic pressure of people with rare diseases. You must know that there are many rare diseases in daily life, and it costs a lot of money at the time of **. Especially the ** drug.

Because after buying medical insurance, it is a guarantee for yourself, and if you get sick in the future, you can also get timely subsidies, and you will not be particularly poor.

Of course, it is to better reimburse yourself for medical treatment, and it is also to be able to reduce some expenses when you see a doctor.

There are more than 7,000 known rare diseases in the world, and there are more than 20 million rare disease patients in China. It can be seen that rare diseases are not particularly rare, and it is surprising that there are so many rare disease patients in China. However, the probability of the occurrence of this disease is relatively low, and the cost of the disease is particularly expensive, making many families unable to make ends meet.

Now the medical insurance has included 5 rare disease drugs in the reimbursement list, and the annual cost has been reduced from one million yuan to 100,000 yuan, which is very good news for rare disease patients.

Introduction to Rare Diseases.

Like a cold and fever, this is a common disease, basically everyone will get it, and it is relatively simple, and the cost is not particularly expensive. But some genetic diseases are really difficult to **, for example, there is a young man's bones that disappear inexplicably every day, or the child's body is particularly thin and always can't get fat. These are some rare diseases, and the probability of occurrence is particularly low, but parents will not give up on their children.

Parents will always empty their homes and then take their children to the whole country, from major hospitals all over the world for examinations, wanting to seek a glimmer of hope.

The state is very concerned about rare diseases.

There are more than 200,000 new rare disease patients in China every year, which is a relatively large number. The state is also very concerned about patients with rare diseases, and needs to provide them with some help, such as including some drugs in the medical insurance reimbursement list. It is also believed that with the improvement of medical insurance construction and the increase of financial funds, more and more rare disease drugs will definitely be included in the reimbursement list, so that the families of rare disease patients will bear relatively small economic pressure.

It is also hoped that a charity will be established to raise funds for rare disease patients.

Conclusion Many people say that a knife does not hurt if it is not on one's body, and this statement does have a certain degree of correctness. Some parents don't know much about rare diseases, and they hope that they will never know about them and not suffer from this kind of pain.

Rare diseases are diseases that cannot be solved by human beings, for every patient, this is a very serious impact, it takes a lot of money and time in the process, it will be a huge burden for the patient's family, and the first drug of rare diseases is included in the medical insurance, which is a very good thing for many rare disease patients.

The harm of these rare diseases to the body is very large, and it is not good, there are very few people who get this disease, the cost is very high, and it is a long-term process, this is a chronic disease, if not, it will die, the cost is particularly high, and the pressure for a family is very high.

Rare disease is a rare disease with a high mortality rate and a relatively low incidence, which is generally caused by genetic mutations or genetic factors, which will have a great impact on the patient's family.

Rare disease is a frightening disease, rare, refractory, high is the characteristics of this disease, due to the high cost, medical insurance reimbursement has also become a lifesaver for sick families, up to now, China has 2860 kinds of drugs into the national medical insurance catalog, 67% of the domestic listed rare disease drugs are in it, greatly reducing the burden of patients.

Rare diseases are mostly congenital diseases, generally referring to diseases with a very low incidence rate, the number of rare diseases is the total population, there are many types of rare diseases, let me tell you about the more common rare diseases. <>

Amyotrophic lateral sclerosis, commonly known as ALS syndrome, is not only ineffective, but also fatal, usually killing within 3-5 years of onset. Marfan syndrome, commonly known as Spider-Man disease, in which the lower body is much longer than the upper body, is a congenital disorder of tissue disintegration and is a hereditary connective tissue disorder.

Brittle bone disease, also known as brittle bone disease or porcelain doll disease, has an incidence of about 1 in 10,000 to 15,000. Hemophilia is a hereditary bleeding disorder that is usually male and requires lifelong dependence on clotting factor drugs. Albinism is an autosomal recessive form caused by a genetic mutation that causes a defect in melanin production.

Citrullinemia is also caused by genetic mutations, which can generally be divided into citrullineemia type 1 and citrullineemia type 2, and patients will experience insomnia, sweating, vomiting, incontinence, convulsions and other symptoms. Other rare diseases are idiopathic pulmonary hypertension, hypophosphatemic rickets, arginase deficiency, phenylketonuria.

Spinal muscular atrophy, autoimmune encephalitis, coronary artery ectasia disease, neuromyelitis optica, lysine urine protein intolerance, lysosomal acid lipase deficiency, porphyria, Lellen syndrome and many more. There are many types of rare diseases, many of which are now covered by medical insurance, which can also reduce the burden on families with the disease. <>

Albinism, acromegaly. Idiopathic pulmonary hypertension. These diseases are all rare.

There are coronary heart disease, rare diseases that improve one's own immunity, and some comprehensive diseases, as well as self-brought genetic diseases, which have been included in medical insurance.

There are albinism, acromegaly, idiopathic pulmonary hypertension, phenylketonuria, and many more.

What does it mean that the cost of drugs for one million children with rare diseases included in medical insurance has been reduced to 50,000?

Rare diseases refer to some diseases with a very low incidence, the proportion of rare diseases in the population is very low, according to the number of patients, rare diseases may also be transformed into common diseases, we usually have thalassemia as a common rare disease, as well as the commonly known glass doll disease, in addition, ALS is also a relatively rare disease, these diseases are very rare in the population, so they are called rare diseases. Patients with rare diseases may need to take medication throughout their lives, so having a rare disease is also a great test of every family's financial ability.

Rare diseases are very rare, so the cost of needing ** is also relatively large, therefore, suffering from rare diseases will basically make the family economic situation very difficult, plus rare diseases need to take medicine for a lifetime, so people who suffer from rare diseases often feel very stressed, but in our country, in order to help patients with rare diseases live a better life, some rare diseases have been included in the medical insurance, which makes many rare disease patients need to spend a lot of medical expenses every year greatly reduced. Basically, they can maintain a normal life, so the inclusion of rare diseases in medical insurance is very good news for rare disease patients, so that more rare disease patients can be treated.

There are very few special drugs for rare diseases, so it is very normal for patients with rare diseases to take drugs for a lifetime, mainly because the number of rare diseases is small, there are few suitable opportunities to study rare diseases, and the audience is relatively small, so in the unprofitable situation, there are few businesses willing to operate rare disease drugs, so there are very few drugs for rare diseases, which is a very big test for rare disease patients, so there is basically no way to study rare diseases. It can only be said that after the continuous development of medicine in the future, there are more rare diseases, and after the advent of drugs, rare diseases can be completely eliminated.