Good news! China s 67 drugs for rare diseases have been included in medical insurance, which disease

Updated on healthy 2024-07-04
19 answers
  1. Anonymous users2024-02-12

    Rare disease is a frightening disease, rare, refractory, high is the characteristics of this disease, due to the high cost, medical insurance reimbursement has also become a lifesaver for sick families, up to now, China has 2860 kinds of drugs into the national medical insurance catalog, 67% of the domestic listed rare disease drugs are in it, greatly reducing the burden of patients.

    Rare diseases are mostly congenital diseases, generally referring to diseases with a very low incidence rate, the number of rare diseases is the total population, there are many types of rare diseases, let me tell you about the more common rare diseases. <>

    Amyotrophic lateral sclerosis, commonly known as ALS syndrome, is not only ineffective, but also fatal, usually killing within 3-5 years of onset. Marfan syndrome, commonly known as Spider-Man disease, in which the lower body is much longer than the upper body, is a congenital disorder of tissue disintegration and is a hereditary connective tissue disorder.

    Brittle bone disease, also known as brittle bone disease or porcelain doll disease, has an incidence of about 1 in 10,000 to 15,000. Hemophilia is a hereditary bleeding disorder that is usually male and requires lifelong dependence on clotting factor drugs. Albinism is an autosomal recessive form caused by a genetic mutation that causes a defect in melanin production.

    Citrullinemia is also caused by genetic mutations, which can generally be divided into citrullineemia type 1 and citrullineemia type 2, and patients will experience insomnia, sweating, vomiting, incontinence, convulsions and other symptoms. Other rare diseases are idiopathic pulmonary hypertension, hypophosphatemic rickets, arginase deficiency, phenylketonuria.

    Spinal muscular atrophy, autoimmune encephalitis, coronary artery ectasia disease, neuromyelitis optica, lysine urine protein intolerance, lysosomal acid lipase deficiency, porphyria, Lellen syndrome and many more. There are many types of rare diseases, many of which are now covered by medical insurance, which can also reduce the burden on families with the disease. <>

  2. Anonymous users2024-02-11

    Albinism, acromegaly. Idiopathic pulmonary hypertension. These diseases are all rare.

  3. Anonymous users2024-02-10

    There are coronary heart disease, rare diseases that improve one's own immunity, and some comprehensive diseases, as well as self-brought genetic diseases, which have been included in medical insurance.

  4. Anonymous users2024-02-09

    There are albinism, acromegaly, idiopathic pulmonary hypertension, phenylketonuria, and many more.

  5. Anonymous users2024-02-08

    Summary. The new version of the National Medical Insurance Drug Catalogue adds 74 kinds of drugs, involving 21 clinical groups, including 20 drugs for chronic diseases such as hypertension, diabetes, hyperlipidemia, and mental illness, 18 drugs for tumors, 15 drugs for anti-infectives such as hepatitis C and AIDS, 7 drugs for rare diseases, 2 drugs for new coronary pneumonia, and 12 drugs for other fields, and patients benefit from a wide range of benefits.

    The new version of the National Medical Insurance Drug Catalogue has added 74 kinds of drugs, involving 21 clinical groups, including 20 kinds of drugs for chronic diseases such as hypertension, diabetes, hyperlipidemia, and mental illness, 18 kinds of drugs for tumors, 15 kinds of anti-infective drugs such as hepatitis C and AIDS, 7 kinds of drugs for rare diseases, 2 kinds of drugs for new coronary pneumonia, and 12 kinds of drugs for other fields, and patients have benefited from a wide range of benefits.

    Is glycogen storage covered by health insurance?

    Diabetes is one of the 33 major illnesses stipulated by the Insurance Authority in insurance practice, and there is no provision in the national medical insurance that can be reimbursed.

  6. Anonymous users2024-02-07

    67% of rare disease drugs in China have been included in medical insurance, which is undoubtedly a good thing for people with rare diseases. The reason why rare drugs are included in medical insurance is mainly to reduce the drug burden and economic pressure of people with rare diseases. You must know that there are many rare diseases in daily life, and it costs a lot of money at the time of **.

    In particular, if the drug cannot be reimbursed, it is of course unaffordable for ordinary families.

    Although rare diseases are relatively rare, the number of people suffering from rare diseases in the country is still relatively large. If rare drugs are not included in the medical insurance, then people need to pay for all the ** expenses when they are treated, which will naturally add a lot of financial pressure to the patient and his family. Many **rare disease drugs** are relatively high, and most people with rare diseases, even if the disease is relieved, if they want to be completely **, they can't do without **drugs.

    If you can't be reimbursed at all for the follow-up ** drugs, and you can only bear it yourself, then for ordinary families, there is almost no hope for **. Even if there is a drug, there is no economy to support the cost, and it has to be forced to give up. The state will include 67% of rare disease drugs in medical insurance, which means that people can use medical insurance to reimburse when they have rare diseases.

    After reimbursement through medical insurance, the amount of rare drugs that people bear will also be greatly reduced, which is of course a very good thing.

    Although medical insurance is relatively common in life, before that, people had many restrictions when using medical insurance reimbursement. For example, there are some special drugs that cannot be covered by medical insurance, and these special drugs are often very expensive, making it difficult for patients to afford. After these special drugs or rare drugs are included in the medical insurance, the patient only needs to bear a part of the subsequent treatment.

  7. Anonymous users2024-02-06

    The main reason is that this can reduce the financial pressure of these patients, so that they can afford to see the disease, and increase their chances of survival.

  8. Anonymous users2024-02-05

    The main reason is that this can reduce people's medical costs, which can improve people's livelihood.

  9. Anonymous users2024-02-04

    It means that the medical care of residents is guaranteed.

    Overall, 67% of rare disease drugs in China have been included in medical insurance, and the number of insured people has reached more than 1.3 billion. It shows that medical insurance has been widely popularized, not only in terms of the number of insured people, but also in terms of disease coverage. So this means that the residents' medical care will be guaranteed.

    Specifically, it means that the medical care of residents is guaranteed, the ability to fight risks is enhanced, and the patients with diseases are treated. The following explains in detail.

    Clause. 1. China's rare disease drugs have been included in the medical insurance and the number of insured people is large, which means that the medical care of residents can be guaranteed: 67% of the drugs for rare diseases in China have been included in the medical insurance, which shows that the scope of medical insurance protection is very wide and the protection is very large. In addition, the number of people insured by medical insurance has reached 100 million, indicating that China's medical insurance has been basically universalized.

    It can be seen that China's medical insurance has two characteristics, first of all, strong protection, and secondly, wide coverage. For individuals, it greatly protects life and health. For society, society will develop steadily as a result.

    It can be seen from this that this move means that the residents' medical care can be guaranteed.

    Clause. Second, China's rare disease drugs have been included in the medical insurance and the number of insured people is large, which means that the ability to fight risks has been enhanced: because China's medical insurance not only includes chronic diseases and conventional diseases into the medical insurance, but also the vast majority of rare diseases are also included in the medical insurance, with a wide coverage rate and strong protection ranking first in the world. So this move means that the ability to resist risks is enhanced.

    Clause. 3. China's rare disease drugs have been included in the medical insurance and the number of insured people is large, which means that disease patients can be treated: Generally speaking, the cost of rare diseases is very high, and there are not a few cases of poverty due to illness and return to poverty due to illness, which has broken many happy families, and many patients with rare diseases choose to delay treatment in order to save costs. After rare disease drugs are included in the medical insurance, the cost will be reduced.

    It means that the patient will be saved.

  10. Anonymous users2024-02-03

    This means that if people get sick in the future, they will be less stressed and will be reimbursed.

  11. Anonymous users2024-02-02

    After having a rare disease, it can be reimbursed by medical insurance, which relieves people's pressure and gives these people with rare diseases a hope of survival.

  12. Anonymous users2024-02-01

    From this data, it can be seen that the scope of medical insurance in China is constantly expanding, and it also has a good guarantee for some rare diseases. And people's sense of security is also getting stronger.

  13. Anonymous users2024-01-31

    This means that our country is targeting rare diseases.

    The drug guarantee mechanism has been continuously improved, and efforts are also being made to provide better protection for patients with rare diseases.

    45 drugs for rare diseases in China have been included in the National Medical Insurance Drug List

    When it comes to rare diseases, many people's first thought is that it is difficult and expensive, and many times the cost of a drug for rare diseases is as high as thousands or tens of thousands of yuan, and the frequency of use of drugs for this rare disease is not high, and many hospitals cannot equip it. At present, there are tens of millions of rare diseases in our country, and there are new patients every year, so that such a huge group of patients spends a lot of money on drugs, and most of the rare disease drugs are purchased by patients at their own expense and cannot be reimbursed by medical insurance.

    After understanding these situations, our country's medical insurance institutions have reduced the number of rare disease drugs through negotiation of access to rare disease drugs, and 45 rare disease drugs have been included in the national medical insurance drug list through negotiation, which is to allow rare disease patients to get better medical security.

    The drug guarantee mechanism for rare diseases is constantly improving

    It is precisely because our country is constantly adding some rare disease patients every year that the country will establish a multi-party financing rare disease guarantee mechanism, and continue to improve it, in order to improve the level of diagnosis and treatment services for rare disease patients, enhance the guarantee ability of rare disease drugs, better provide more protection products for rare disease patients, and do its best to give rare disease patients basic medical rights.

    In the past, many patients with rare diseases did not have targeted drugs.

    In order to include these rare disease drugs in the medical insurance, the state came forward to negotiate medical insurance and "exchange volume for price", which is the result that dozens of rare disease drugs are now included in the national medical insurance drug list, which is also to save the lives of rare disease patients to a greater extent, so that they can live well.

  14. Anonymous users2024-01-30

    It means that the scope of medical insurance drugs in China has been expanded, which is of great help to the masses of people to solve the problem of "expensive medical treatment".

  15. Anonymous users2024-01-29

    For many people, it will definitely be a lot cheaper to see a doctor. It's not as difficult as it used to be.

  16. Anonymous users2024-01-28

    The help it brings to patients includes the ability to reduce the corresponding economic consumption, so that rare diseases can be reduced.

    The patient's family is more harmonious, which can give rare disease patients a chance to be reborn, and will not give up the hope of life because of the sky-high drug cost of rare diseases, and more importantly, it can allow more rare disease patients to persist for a long time until they recover, so rare disease drugs are included in the medical insurance, which is really very important, because this will be more helpful to rare disease patients.

    Up to now, nearly 2,860 kinds of drugs in China have entered the national medical insurance catalog.

    Among them, 67% of rare diseases are marketed drugs.

    Already in it, this will be of better help to most patients with rare diseases, and can reduce the burden of medication on patients with alleviating diseases, although we don't want to admit it, but in fact, this is the case, many patients with rare diseases give up, because rare disease drugs are too expensive, if ordinary families can't afford to use them at all, they can only give up, and inclusion in medical insurance is equivalent to giving these rare disease patients a chance to be reborn.

    Rare disease drugs can be included in the medical insurance, which is equivalent to allowing the families of rare disease patients to relieve the economic pressure to a certain extent, so as to make the family more harmonious, so that the relevant people in the family have hope and hope for the future of the family to live together peacefully, so that rare disease patients can let go of too much psychological burden, and at the same time, it can also make the parents of rare diseases work outside the home will not be so hard, and more importantly, it can enable those relatively poor rare disease families to buy relevant drugs to their own children. Give your child hope back to life.

    Therefore, it is really crucial for rare disease drugs to be included in medical insurance, which will have a lot of help for most patients, so that these patients can continue to make themselves go on, so that they can be cured one day, and let themselves have hope of life, so that those families who can no longer support it have the motivation to continue to support and will not give up because of this.

  17. Anonymous users2024-01-27

    The inclusion of drugs for rare diseases in medical insurance means that more and more rare patients can reduce the cost of medical treatment, which is a good thing for the public.

  18. Anonymous users2024-01-26

    67% of the drugs for rare diseases have been included in social insurance, which has great benefits for patients with rare diseases, and patients rarely consider the cost during treatment.

  19. Anonymous users2024-01-25

    Of course, this is of great help to patients with rare diseases, and will greatly reduce some of the financial pressure on them or their families. Everyone knows that rare ** is very rare, and the incidence is relatively small, so there are relatively few people who have studied it, and there are many that do not have specific drugs. So if you want to have a rare disease, it costs a lot of money, and it's a bottomless pit, and you don't know when you'll be able to stop spending money.

    The vast majority of families are relatively ordinary, so they really can't afford to bear the high ** cost. <>

    But at the same time, they don't want to give up on themselves, and they don't want to give up their children, so in such a situation, it is a very important thing to suppress this **. According to the available data, 67% of rare diseases in our country have been included in the scope of medical insurance reimbursement, which means that 67% of rare diseases can be reimbursed through medical insurance. Although this money may not be reimbursed very much, or this money will not be able to reimburse us all.

    But even if 10,000 yuan is reimbursed for 100 yuan, then it is a good thing. Because we don't know how difficult it is for such a family to spend 100 yuan, and it may require them to exhaust all their strength. <>

    We can see a lot of people suffering from rare diseases on the Internet, their lives are very difficult, because they don't know when such days will end, they don't know whether the disease can be cured, they only know that they have to spend money continuously, but the speed of making money can't keep up with the speed of spending money. If it can be included in the medical insurance for reimbursement, it is really good news for them, and they are really excited. If more and more people study these rare diseases in the future, and can also let these people get more help, it will be a better and better thing, I hope everyone can return to normal, and there will be no more such diseases.

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