The girl has been suffering from a rare disease for 28 years, and her whole body hurts when she is c

Updated on healthy 2024-07-24
4 answers
  1. Anonymous users2024-02-13

    It's a very rare genetic disease, so rare that you may not have even heard of his name, and it's called "familial cold autoinflammatory syndrome". Rare diseases.

    Not only is it refractory, but there is not even a basic ** drug. It's because it's so rare. As a result, the patient has not been able to find a specific ** for more than ten years, and the doctor always thinks that the symptoms of the patient are due to allergies and growing pains.

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    It is understood that the patient's name is Bai Tao, and she was only 4 years old when the disease first broke out. At that time, I was covered with red rashes all over my body.

    It doesn't itch at all, it hurts. The pain in the joints is unbearable, and there is fever and vomiting at night. When she went to the hospital for a check-up, the doctor told her that the rash was due to allergies, that the joint pain was due to growth, and that the headache was a migraine.

    Before finding the real **, Bai Tao spent more than ten years in order to find out what food he was allergic to. At that time, as long as she ate one thing, and the disease still did not disappear, she would refuse to eat such things, and gradually now Bai Tao only drinks water and eats white rice. The symptoms of systemic allergies still did not disappear, so Bai Tao suspected that he was allergic to the air, and it was difficult to live in a vacuum in the future.

    After seeking medical treatment for many years, Bai Tao later had a genetic test.

    Finally, the specific problem was identified. It turned out that she had a family genetic disease.

    Symptoms like her had also occurred in her mother before, and although the result was cruel, it made Bai Tao take a deep breath. At least the white peach no longer has to worry about finding allergens, because the disease will be dominantly inherited, so it means that the white peach will not be able to have children in the future.

    I feel very sympathetic to the experience of White Peach, and I personally have a similar disease that causes me to have rashes all over my body and my joints to ache. The disease is called systemic lupus erythematosus.

    It's not a rare disease, but it's enough to ruin my life. For the sake of the disease, I have been taking medicine every day, and the *** of the medicine has changed my whole being.

  2. Anonymous users2024-02-12

    A rare disease known as familial cold autoinflammatory syndrome is less common than the most commonly known rare disease.

  3. Anonymous users2024-02-11

    The girl had a neurotic disorder, her pain perception was pronounced, and she was more sensitive to the temperature of the environment.

  4. Anonymous users2024-02-10

    Rheumatism and colds You may not know that mild rheumatism and colds can also cause body aches. If you have body aches and pains.

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