How to apply for national assistance for rare diseases?

The diagnosis, treatment and assistance of rare diseases plague many people in China, and there are many new rare disease patients every year.

1. At present, there is no special relief measure for rare diseases in China.

2. Open a rare disease diagnosis certificate and medical expense budget statement in the hospital, remember to stamp the official seal of the hospital, and then go to the county, city or district civil affairs bureau to submit an application for assistance.

After the application is successful, take the relief materials to the local Red Cross Society for verification and review opinions, and then report to the Provincial Red Cross Society.

Finally, the Provincial Red Cross Society will uniformly submit it to the public welfare of rare disease relief ** for review.

3. You can also seek help through the rare disease public welfare organization - "Porcelain Doll Care Association", which has helped more than 80 patients complete surgery.

Focus on rare diseases.

There are many people who feel that rare diseases may be far away from them and may never be connected with them. However, once both men and women have the same defective gene, then it is very likely that they will have children with rare diseases after marriage, which is not very high, it can be said that it is very low, but if it does, it is 100%.

Therefore, we should pay more attention to health and pay attention to rare diseases.

1. The applicant shall go to the designated hospital to issue a certificate of diagnosis of rare diseases and a statement of medical expenses budget (stamped with the official seal of the hospital), and apply for assistance at the civil affairs bureau of the county, city or district where it is located.

2. After verification, the applicant shall go to the Red Cross Society of each county with the application materials for assistance, and the local Red Cross Society will carefully verify the aid object and put forward review opinions, and then report to the Provincial Red Cross Society.

3. The Provincial Red Cross Society will uniformly submit it for review of rare disease relief public welfare.

Extended Information: The last day of February is a very important day – International Rare Disease Day. Rare Disease Relief Charity** was established by the China Charity Federation in Beijing on December 23, 2009 to support and assist patients with rare diseases such as hemophilia.

Establish a core working team and a volunteer team for rare disease relief to improve the society's awareness and understanding of rare diseases, call on all sectors of society to care for and support patients with rare diseases, help patients with rare diseases improve their physical and mental health, and promote patients with rare diseases to obtain sustainable medical security. Rare Disease Relief** will be used for rare disease science education, patient life and medical assistance, the organization of patient art activities, related scientific research and other activities.

Since the establishment of the Rare Disease Relief Public Welfare**, it has received donations from people and enterprises from all walks of life around the world, both spiritually and materially, which has ignited the flame of hope in the hearts of rare disease patients.

At present, there is no official introduction of relevant preferential subsidy policies in China. If you buy medical insurance, the medical expenses that meet the basic medical insurance drug list, diagnosis and treatment items, medical service facility standards, emergency and rescue expenses shall be paid from the basic medical insurance ** in accordance with national regulations.

Dear and dear, patients with rare diseases can apply for state assistance through the following steps:1Determining a Rare Disease Diagnosis:

Rare disease diagnosis in a hospital or professional institution to obtain a rare disease diagnosis certificate. 2.Apply for medical insurance designated hospitals:

Patients can choose to be carried out in a designated hospital under medical insurance**, and the hospital shall provide a corresponding medical service agreement, and the charging standard and service content shall be clarified. 3.Submit an application for state relief:

Patients can apply for national assistance at hospitals or designated medical insurance institutions and submit relevant materials, including: rare disease diagnosis certificate, medical expense list, hospitalization records, service agreement of medical insurance designated institutions, etc. 4.

Review and approval: The National Health Commission will review the materials submitted by the patient for sale, and approve the relief according to the patient's situation, and the relief funds will be allocated to the patient's medical insurance account by the financial department. It should be noted that the application for national assistance needs to meet certain conditions, such as the patient must be carried out in a designated institution for medical insurance**, and the patient's family economic situation should meet the national assistance standards.

At the same time, the specific rescue standards and procedures may vary in different provinces and cities, and patients are advised to understand the specific local policies and procedures before applying.

2. Click [Enter Life Account].

3. Click to enter the left lower tremor corner dialogue logo.

4. Reply 2 in the dialog box, pop up to apply for medical assistance items, click to enter the details.

5. You can see how to apply and the effective application time.

Legal basis: "Interim Measures for Social Assistance" Article 12 For families who have been approved to obtain the highest level of subsistence security, the people's ** civil affairs department at the county level shall issue the minimum subsistence allowance on a monthly basis according to the difference between the per capita income of the family members living together and the local minimum subsistence security standard. For the elderly, minors, severely disabled persons, and seriously ill persons who still have difficulties in living after receiving the minimum livelihood guarantee, the local people at or above the county level shall take necessary measures to provide livelihood guarantees.

Summary. Hello dear, <>

Rare disease assistance can be applied for at the local health insurance bureau. Assistance standard: After reimbursement of basic medical insurance and serious illness insurance, the remaining compliant medical expenses will be provided with medical assistance and special assistance if they meet the conditions for medical assistance.

How to apply for national assistance for rare diseases?

Hello dear, <>

Rare disease assistance can be applied for at the local health insurance bureau. Assistance standard: After the reimbursement of basic medical insurance and serious illness insurance, the remaining compliant medical expenses will be provided with medical assistance and special assistance.

Hello <>

You first went to the hospital to diagnose and confirm that the elimination of the lesion is a rare disease. Register with the local CDC or health and family planning department, and check whether it is listed in the national list of rare diseases. If it has been included in the national list of rare diseases, apply for national relief funds through the CDC or the health and family planning department.

Patient ID card, diagnosis certificate, medical expense details and other relevant documents are required. After the application for funds is approved, the patient can go to the Civil Affairs Bureau with the approval document and can also apply for national relief funds.

2. Click [Enter Life Account].

3. Click to enter the dialogue icon in the lower left corner.

4. Reply 2 in the dialog box, pop up to apply for the Yikai Cave Ruler Therapy Relief Project, click to enter the details.

5. You can see how to apply and the effective application time.

Legal basis: "Interim Measures for Social Assistance" Article 12: For families approved to receive minimum livelihood security, the county-level people's ** civil affairs department shall issue a minimum livelihood security fund on a monthly basis according to the difference between the per capita income of the family members living together and the local minimum living security standard. For the elderly, minors, severely disabled persons, and seriously ill patients who still have difficulties in living after receiving the minimum livelihood guarantee, the local people at or above the county level shall take necessary measures to provide livelihood guarantees.

2. Click [Enter Life Account].

3. Click to enter the dialogue icon in the lower left corner.

4. Reply 2 in the dialog box, pop up to apply for medical assistance items, click to enter the details.

5. You can see how to apply and the effective application time.

Legal basis: "Interim Measures for Social Assistance" Article 12 For families approved to receive minimum livelihood security, the people's ** civil affairs department at the county level shall issue a minimum livelihood security fund on a monthly basis according to the difference between the per capita income of the family members living together and the local minimum living security standard. For the elderly, minors, severely disabled persons, and seriously ill persons who still have difficulties in their lives after receiving the most severe and low livelihood guarantees, the local people at the county level or above shall take necessary measures to provide livelihood guarantees.

Rare diseases refer to diseases with a very small number of patients, which bring a great burden to patients and their families due to their high difficulty and high cost. In order to protect the rights and welfare of patients with rare diseases, the state has implemented a series of relief policies and measures. To apply for state assistance, the following conditions are required:

1.Diagnosed with a rare disease: Patients must have a rare disease diagnosis certificate issued by a hospital.

2.Financial hardship: The income of the patient or his or her family is lower than the local minimum subsistence standard.

The specific application process and method may vary by region and policy, and it is impossible to list them all here. In general, applications can be made through the following channels:1

Medical institutions: Patients can learn about the assistance policies and application process from the medical institution they visit, and the medical institution will provide corresponding application** and guidance. 2.

Social organizations: Patients can also apply for assistance through social welfare organizations, charities, and other channels.

Hello dear, <>Thank you for your patience, and we have helped you find out how to apply for national assistance for rare diseases as follows: Rare diseases refer to diseases with a very small number of patients, which bring a great burden to patients and their families due to the difficulty and high cost of traveling.

In order to protect the rights and welfare of patients with rare diseases, the state has implemented a series of relief policies and measures. To apply for state assistance, the following conditions need to be met:1

Diagnosed with a rare disease: Patients must have a rare disease diagnosis certificate issued by a hospital. 2.

Financial hardship: The income of the patient or his or her family is lower than the local minimum subsistence standard. 3.

Possess relevant documents: Patients or their family members need to provide ID cards, household registration books, disease diagnosis certificates and other relevant materials. The specific application process and method may vary by region and policy, and it is impossible to list them all here.

In general, applications can be made through the following channels:1Medical Institutions:

Patients can check with their provider for information about the policy and application process, and the provider will provide appropriate application** and guidance. 2.Disabled Persons' Federation:

Patients can also apply for assistance through social welfare organizations, charities, etc.

Tips: There are generally differences in different regions and government policies, and specific relief standards, amounts, qualifications and other issues need to be confirmed in accordance with local regulations. At the same time, it is also necessary to comply with relevant laws, regulations and operating norms to ensure the legality and reliability of the application process.

Hello dear, I am happy to answer for you, you need to follow the steps below to apply for national assistance for rare diseases:1Confirmation of a rare disease diagnosis:

First of all, you need to be diagnosed with a rare disease, you can go to a regular hospital for examination and diagnosis, or contact the National Center for Rare Disease Diagnosis and ** for diagnosis. 2.Apply for assistance:

The health department or the medical insurance department will review the application materials to confirm whether they meet the conditions for assistance. 4.Rescue:

After the review is passed, the state will give the patient certain assistance, including medical expense reimbursement, medical assistance funds, etc. It should be noted that certain conditions need to be met to apply for assistance for rare diseases, such as the patient's family financial situation is poor, and the burden of medical expenses is heavy. At the same time, the amount of assistance will also vary according to the specific situation of the patient.

I sincerely hope that mine can help you! 

Legal analysis: You can apply, depending on the value of the car, and the amount of money needed for serious illness, if you can't apply for the country's serious illness assistance, you can use the current serious illness relief platform.

Legal basis

Opinions on the Establishment of a Living Allowance System for Disabled Persons with Difficulties and a Nursing Subsidy System for Severely Handicapped Persons with Severe Disabilities (Guo Fa 2015 No. 52).

Article 3 Application Procedures and Management Measures Paragraph 1 Application Procedures and Management Measures Paragraph 1 Voluntary Application. The two subsidies for the disabled shall be submitted by the disabled person in writing to the sub-district office or township ** acceptance window where the household registration is located. The legal guardian of a disabled person, the person legally obligated to support, raise, or support them, the villagers' (residents') committee, or other entrusted person may handle the application on their behalf.

To apply for the two subsidies for the disabled, the applicant shall hold the second-generation certificate of the People's Republic of China for the disabled and submit relevant supporting materials. The second item is a step-by-step review. Sub-district offices or townships** rely on the mechanism of "one-door acceptance and coordinated handling" of social assistance and social services to accept applications for two subsidies for persons with disabilities and conduct a preliminary review.

The materials that pass the preliminary examination shall be submitted to the county-level Disabled Persons' Federation for relevant review. Qualified materials are to be forwarded to the county-level people's ** civil affairs department for review and approval, and the economic status of the disabled family's family is to be reviewed on the basis of the verification mechanism for the resident's family economic status. The county-level people's ** civil affairs department shall apply for the allocation of funds in conjunction with the county-level disabled persons' federation in conjunction with the financial department at the same level.

Interim Measures for Social Assistance" (Order No. 649) Chapter V Medical Assistance Article 30 An application for medical assistance shall be submitted to the township people's ** Kai and sub-district offices, and after review and publicity, the county-level people's ** civil affairs department shall examine and approve it. Medical assistance for family members of the minimum subsistence allowance and persons supporting persons in extreme poverty shall be directly handled by the people's ** civil affairs department at the county level.