A 1 year old child has a rare disease and needs a 700,000 dose of medicine every four months, is it

Only when I became a mother did I know that the child's life was more important than my own, and when I became a mother, I knew that as long as the child could live, it didn't matter if the family was bankrupt, but Wu Tong couldn't save the child even if she invaded the family, and her child Zhao Qirui suffered from spinal muscular atrophy!

In the past, there was no solution to this disease, and it could only be **** to alleviate the degeneration of limbs!

Now that there is a cure for this disease, it can be **, but this cost is definitely not something that ordinary families can afford!

The first injection can last for six months, **700,000!

The second injection can last for four months, **700,000!

In the future, I need to inject 700,000 nusinersen sodium injection every four months!

In other words, if you want your child to live, the annual ** fee is 2.8 million!

Hang on? Abandon? How to choose?

It's not a matter of choice at all, if the family is very rich, then get an injection every four months, as long as the child lives! But Wu Tong's family has no money, live broadcast, fundraising, everything that can be done has been done, the first shot is successfully given to the child, the child's health is obviously improving, and the second shot is also time, but he made up 400,000, 700,000 from 700,000, and 300,000 is still missing!

Therefore, it is insistence or giving up, not what the child's mother says, but what the money says!

Oral new drugs are on the market, and the price of the original drug is reduced!

The price of the medicine is going to be reduced, which gives Wu Tong hope, but now there is no price reduction, the child urgently needs a second injection, and it is impossible to say when the price will be reduced, so he can only wait, adults can wait, children can't afford to wait, children with spinal muscular atrophy are likely to be isolated from the world because of a fever and a cold!

I feel so uncomfortable, this child has only been in the world for a long time, and he has to deal with money, with money, the child can live, without money, his parents are trying to keep it, but he can't keep it!

Summary:

I think if I were the mother of the child, I would persevere, and I would persevere until the day I couldn't hold on anymore!

Some people say, it's all like this, just give up, it's not worth spending so much money, you can't have another child!

If it's not your child, of course you can say that, and of course you can justifiably say give up!

What if it's your child? Is it that as long as he can still breathe, as long as he can live, you will not give up!

A 1-year-old child has a rare disease and needs a shot of 700,000 yuan every four months, and I think as a parent should stick to it. Because after all, this child is our flesh and blood, and it is not easy to get to this world. We push ourselves for the sake of our children, let ourselves play to our maximum potential, increase our economic income, and save our children.

I don't think I can give up if I'm a parent. Because after all, he is his own child and a fresh life, but if it is someone else, he will choose to give up if he feels that the high cost is difficult to support. Whoever it happened to, the pain is only known to oneself, not to be pointed at by bystanders.

This is a very human question, but most people should choose to give up, except for those from wealthy families. Because more than 2 million medical expenses are needed a year, which is not something that ordinary families can afford.

I think it's time to give up, this disease is very rare, it costs a lot of money, and it can't be completely cured, sticking to it will only increase the burden on the family, although parents don't want to give up their children, but there is no choice.

A 1-year-old child has a rare disease, and he needs a shot of 700,000 medicine every four months, of course, he insists on it, that is, he must take care of this disease for the child, you brought him into this world in the first place, and you are also responsible for him.

I think the average family can choose to give up. Because the cost is too expensive, it is difficult for the child to bear the pain in the process, and the quality of life cannot be guaranteed in the future.

Every baby is the sustenance of the family's hope, if the hope is great, you must insist, there is really no way, I think it is better to give up.

I think you should stick to even the expensive medicine, because although the child is very young, his life has just begun, and he should not give up on his child.

It depends on the ability of the individual family, and if the family really does not have so much money, there is no need to insist.