How long can you live with tuberous sclerosis? How long can you live with tuberous sclerosis?

Tuberous sclerosis itself is a disease caused by genetic factors and the nervous system and other involvement, with striped hypopigmented plaques, facial angiofibromas, epilepsy, and intellectual disability as the main manifestations. The prognosis of this disease is related to the extent of organ involvement and the extent of the lesion. The prognosis is worse in those with more severe onset in infancy, with 3% of patients dying in the first year, 28% by age 10, and 75% before age 25.

He often dies of epilepsy and secondary infection, and occasionally dies of tumor, heart failure and pulmonary fibrosis, and only has ** damage and epilepsy for older children and young adults, and the prognosis is difficult to predict.

Tuberous sclerosis itself is a genetic disorder of the central nervous system. Tuberous sclerosis itself does not affect life expectancy, but the disease is very easy to induce various malignant tumors, because the characteristics of this disease will destroy the immune system, resulting in a rapid decline of immunity in a short period of time, thus causing malignant diseases. **This condition is very meaningful, and there is the option of using a targeted topical Q-switched laser to remove visible nodules from the lesions, and then to use vitamin B1, vitamin B6, and vitamin B12 to help relieve neurological symptoms.

For patients with concomitant epilepsy, it is best to choose to go to a neurology department for targeted treatment** to prevent symptoms from worsening.

The impact of tuberous sclerosis on life varies from person to person, and the specific circumstances are as follows: 1. Frequent seizures of epilepsy can easily lead to complications and even life-threatening; 2. Cardiac rhabdomyoma is large or more, which can cause arrhythmia and sudden death; 3. The patient's kidney or lung involvement is serious, and kidney transplantation or lung transplantation is required, which can be life-threatening if not carried out in time; 4. Intracranial subependymal giant cell astrocytoma, which is too large to cause hydrocephalus, and surgery is risky in severe cases of hydrocephalus, which can affect life. Most people with tuberous sclerosis complex live the same life as normal people and are not affected.

Hello, I am glad to answer for you, the impact of tuberous sclerosis on life varies from person to person, and frequent seizures can easily lead to complications and even life-threatening; Cardiac rhabdomyomas are large or numerous, which can cause arrhythmias and sudden death; The patient's kidney or lung involvement is severe, and kidney transplantation or lung transplantation is required, which can be life-threatening if not performed in time; Hopefully.

Hello, tuberous sclerosis complex is an autosomal dominant disease with variable penetrance. A positive family history of the disease accounts for 20% to 30%.It is recommended to go to a specialized hospital for a systematic examination, under the guidance of a doctor**, do not use drugs casually.

It can be directly applied to brain cells, which can promote protein synthesis, resist cerebral cortical hypoxia, improve brain energy metabolism, and accelerate cerebral blood circulation.

How is the situation now.

Tuberous sclerosis complex is an autosomal dominant neurological disease that occurs in childhood and causes damage to multiple organs such as the brain, **, peripheral nerves and kidneys. The clinical manifestations are mainly facial sebaceous adenoma, mental retardation and seizures, and the prognosis of the disease is related to the involvement of organs and the degree of lesions

1.Frequent seizures of epilepsy can lead to a variety of complications and can be life-threatening.

2.When the volume or number of cardiac rhabdomyomas are large, it affects the function of the heart, causing arrhythmia, and in severe cases, sudden death.

3.Organ transplantation is required when the lungs or kidneys are severely affected, and can be life-threatening if not done in a timely manner.

4.When the volume of intracranial subependymal nodules is too large, it will cause hydrocephalus, resulting in increased intracranial pressure, and in severe cases, surgery is risky and affects life.

Most patients with tuberous sclerosis complex will not be affected by close monitoring and regular **.

Tuberous sclerosis complex is caused by genetic factors. Sebaceous adenoma skates and mental retardation diseases, if given special care. Generally speaking, there is no particular threat to life, but if it is not taken care of by very professional people.

It can be life-threatening in a short period of time. So. It is necessary to suppress it reasonably.

Tuberous sclerosis complex will affect the life expectancy, and positive ** can reach the life span of a normal person, so patients must start regular ** at an early stage, and adhere to the follow-up and regular review of relevant indicators to prevent the occurrence of complications and strive to improve the prognosis.

Tuberous sclerosis is not usually an advanced stage of cancer, but it can develop, so it is important to take measures to prevent the disease by having regular check-ups once it is detected.

At present, tuberous sclerosis is more common, is a disease that can not be ignored, easy to induce obvious sebaceous adenoma, and will bring inconvenience and distress to patients, affecting the normal life of patients, every friend should pay attention to the disease, in-depth understanding of the symptoms of the disease, the disease of the patient's ** damage is more obvious, most patients have a sebaceous adenoma in the oral and nasal triangle, and will show a symmetrical butterfly-shaped distribution, showing light red or reddish-brown, slightly faded when pressed, Most patients develop before the age of four, worsen with age, and generally do not affect the upper lip.

Some children will produce more than three long leaf-shaped, ovoid loss spots after birth, and if observed under the ultraviolet lamp, it is particularly obvious, mostly occurring in the patient's limbs and trunk, and after growing to the age of ten, shark skin spots will occur in the lumbosacral area, slightly higher than the patient's normal **, local ** thickening is obvious, and will show gray-brown or slightly brown plaques, bringing more trouble and inconvenience to the patient. After the onset of the disease, it is necessary to cooperate with the relevant nursing work as soon as possible**.

The impact of tuberous sclerosis complex on life varies from person to person, and the specifics are as follows:

1. Frequent seizures can easily lead to complications and even life-threatening seizures;

2. Cardiac rhabdomyoma is large or more, which can cause arrhythmia and sudden death;

3. The patient's kidney or lung involvement is serious, and kidney transplantation or lung transplantation is required, which can be life-threatening if not carried out in time;

4. Intracranial subependymal giant cell astrocytoma, which is too large to cause hydrocephalus, and surgery is risky in severe cases of hydrocephalus, which can affect life. Most people with tuberous sclerosis complex live the same life as normal people and are not affected.

Tuberous sclerosis complex is a multi-system involvement, chromosomal genetic disease, generally speaking, such patients have **, encephalitis, mouth, kidney and liver and other parts of the organ benign hamartoma can be manifested as epilepsy, intellectual retardation, **mass, etc., due to, the treatment of the disease, belongs, this disease belongs to the chromosomal genetic disease, if there is such a disease of the patient's children, about 50% of the likelihood, due to the disease, often manifested as multi-organ, hunting, his development has a certain stage, main, Speaking of a tube including nerves, kidneys and lungs, etc. ** Lesions, can occur at different ages, facial lesions, at the age of 4 to 10 years, due to this disease, can, violation, various systems and departments are possible, diagnosis, or reception of such patients, such as, neurology, stomatology, ophthalmology, internal medicine, surgery, etc., when the body is unknown, nodules, yes or nodules, should go to the hospital to avoid delay**.

Tuberous sclerosis complex (TSC), also known as Bourneville disease, is an autosomal dominant neuro** syndrome, and there are also sporadic cases, mostly caused by abnormal organ development of ectodermal tissues, and multiple organs such as brain, **, peripheral nerves, and kidneys can be affected, and the clinical characteristics are facial sebaceous adenoma, seizures and mental decline. The incidence rate is about 1,6000 live babies, with a male-to-female ratio of 2:1.

Most people with tuberous sclerosis complex live the same life as normal and are not affected. If the condition is severe, it may only last for a few years. Tuberous sclerosis complex is an autosomal dominant disorder with variable penetration rates.

The clinical presentation is complex and varied, depending on the location of the lesion. Complications such as kidney failure, heart failure, status epilepticus, and respiratory failure may occur.