What kind of mindset should patients with myasthenia gravis maintain?

Myasthenia gravis is a chronic disease that not only brings physical pain to patients, but also brings great psychological pressure, which causes even more difficulties. On the contrary, a good psychological state, such as optimism and fearlessness, and a cheerful state of mind, will add incomparably strong disease resistance and vitality, which can promote the early development of the disease.

When patients have difficulty chewing and swallowing, attention should be paid to eating soft food, semi-liquid food, and home care should pay special attention to avoid choking and lung infection. When there is dyspnea or muscle weakness crisis and bed rest, life care should be strengthened, and the back should be turned over and knocked in time to avoid lung infection and bedsores.

Myasthenia gravis should pay attention to these: 1. Daily life, combination of work and rest; 2. Dietary regulation Myasthenia gravis is closely related to qi deficiency, so it is more important to regulate the diet, not to be too hungry or too full, and at the same time, various nutrients should be appropriate, and not partial eating. 3. Avoid wind and cold, prevent cold.

4. The influence of emotional regulation and seasonal changes on the disease Patients with myasthenia gravis tend to be aggravated in poor mood and in the cold season of winter and spring.

Myasthenia gravis is not fully accepted or recognized as a chronic disease, and it is necessary to adjust the drug under the follow-up of the doctor for a long time to control the condition. Among the patients I encounter every day, there are many opinions such as "taking a few pills to break the root" or "cutting off the thymus gland can break the root". If you can objectively understand the disease characteristics and laws of myasthenia gravis, and establish a positive attitude, you can well cooperate with the doctor's norms**, so as to avoid detours and avoid falling into the fraud trap thrown by informal or illegal medical institutions.

Lack of understanding of the development and evolution of the disease, thinking that everything will be fine when they get to the hospital and take medicine. In fact, the situation is far more complicated than imagined, on the one hand, the evolution of myasthenia gravis has its own laws, and on the other hand, it takes time for the drug ** to take effect. For patients with severe generalized myasthenia gravis, even if the doctor gives targeted treatment, their condition may continue to worsen in the subsequent period of time, and even develop to a crisis.

Just like when we are driving at a speed of 120 km/h (progressing disease), the car cannot stop immediately after suddenly braking (**), and will coast by inertia, and if there is a deep ravine in front of us, it is possible to overturn. If you do not understand this situation, it is easy to feel anxious and fearful about the condition that continues to decline, and even lose trust in the doctor, which will affect the doctor's further medical decision-making.

During long-term follow-up, it is easy to blame other physical discomforts on myasthenia gravis**. One of the most common phenomena in outpatient clinics is that patients complain of laryngeal discomfort, obstructive feeling, and bulbar muscle weakness symptoms associated with myasthenia gravis, which are prone to panic and recurrence of the condition in the past. In fact, if you test the sound of swallowing, drinking, and speaking on your own, if they are normal, the complaint of discomfort is not related to repeated muscle weakness, but is considered to be a somatization symptom (in the past, it was called plum nuclear gas or hysterical globula).

As a chronic disease, myasthenia gravis can easily cause psychological and emotional problems, and fatigue and weakness due to depression or anxiety will in turn aggravate the patient's discomfort, and if they are unable to distinguish it, they will think that the disease is recurring, aggravating anxiety and worry. So patients need to learn to distinguish between what is the best and what is not, so that there is less panic and fewer visits. Remember the quip:

A woman who has had a baby once will not be pregnant forever! ”